Essential core function of NPHIs at the forefront of dialoge during the Child Health and Mortality Prevention Surveillance meeting
Atlanta, November 11-- Site directors and public health experts from South Africa, Bangladesh, Ethiopia, Mali, Mozambique, Kenya, Sierra Leone, US and the UK convened at the Child Health and Mortality Prevention Surveillance (CHAMPS) site director community meeting where data sharing issues were at the forefront of discussion.
The data that arises out of CHAMPS will help inform communities--what is causing child deaths, so we can prevent them." ”
"With whom to share data, what data, what timeframe, what access and what governance scenarios incited a passionate and important discussion about data sharing. "The data that arises out of CHAMPS will help inform communities--what is causing child deaths, so we can prevent them," says Dickens Onyango, Assistant Director of Medical Services, Ministry of Health, Kenya. These issues are important to IANPHI because data collection, governance and sharing are an essential core function of national public health institutes.
CHAMPS data will help inform a range of public health decisions – including policy changes– to help save young lives. The information that is collected will be disseminated across multiple organizations. With the help of IANPHI, national public health institutes (NPHIs) in CHAMPS countries will have a better capacity to effectively act on the data that is collected. IANPHI also hopes to support the NPHIs becoming future repositories for CHAMPS data.
If you have an NPHI with strong leadership, you can do a lot in country. ”
Inácio Mandomando, Deputy Science Director at Manhiça Health Research Center in Mozambique and Dickens Onyango, Assistant Director of Medical Services, Ministry of Health Kenya spoke first hand on how IANPHI has played an important role in garnering support and developing strategies for national public health institutes to handle CHAMPS data. Not all NPHIs are equipped to handle the high quality research that CHAMPS will produce. This is where IANPHI plays an important role. IANPHI is funded to support data-to-action capacity building at the national level. Ultimately, the data collected by CHAMPS it will have a global impact. Once the data is procured and released, it can be used for global policy change regarding childhood mortality.
Moderated by Tim Morris, CHAMPS Chief Information Officer, the data governance session at the site director’s meeting, shared insight into the many questions and concerns about data sharing inside and outside of the CHAMPS Network.
Data sharing is an important part of CHAMPS work. There can be no policy change without the dissemination of information to the parties responsible for the policies. However, efficient data sharing relies heavily on how it is governed, especially with the sensitivity of CHAMPS research.
There are several different audiences that CHAMPS data will be delivered to, including but not limited to, the local community, media, and national public health institutes. Each of these groups needs access to information from CHAMPS. For example, depending on the causes of death identified through CHAMPS, families and communities might change health-care seeking behaviors, local public health authorities might provide screening or prevention programs, and hospitals might change infection control practices. NPHIs can use the information generated by CHAMPS to identify priorities for public health action. While data collection is in early stages, the results are expected to provide an important contribution to international policy change to prevent childhood mortality.
The CHAMPS network collects and shares data, collaborating with local, national and global stakeholders, including NPHIs and ministries of health to engage and strengthen capacity for high quality high efficiency data collection and policy making that targets child mortality.