FAILURE TO DELIVER DATA, AND LACK OF SHARING, LEADS TO CHILD DEATHS

Shanghai, October 19-- 30+ public health leaders from around the world dedicate efforts to child health evidence-based policy change and dialogue during the Child Health and Mortality Prevention Surveillance (CHAMPS) workshop at the annual meeting of national public health institutes.

"WEduardo, INS Mozambiquee don’t fail to generate data, but we fail to deliver this data in a proper way. We get very good data, and we publish, but we get frustrated because no one uses that data for policy." Eduardo Samo Gudo, Scientific Director of Mozambique’s National Public Health Institute told the global gathering, "We don’t want CHAMPS data to follow the same path. We want CHAMPS data to lead to changes in policy.” 

Dr. Natalie Mayet, Co-director at the South African Regional Global Diseases Detection Program exemplified this need in regard to drug-resistant infections. “If you find someone with multiple drug resistant tuberculosis, how does that get integrated into the system so there is appropriate follow-up?” she asked the attendees. 
Eduardo, INS Mozambique 

Natalie has dedicated her life to this effort. While working as a doctor in community clinics, she quickly realized that her medical school training did not teach her the contextual framework gained from she gained from going into homes and seeing firsthand how people lived, where they worked and the factors that impacted their daily lives. She began to understand the needs of the people and ultimately let those needs guide her work.

Communities do not necessarily have the voice or the ability to express the needs and demands. There are often resource constraints, political constraints and different cultural frameworks.

Natalie Mayet
“”
She became guided by the needs and demands of communities, "how do we deliver a package of care for people to feel safe, to feel well, without having to worry about the lack of water, the lack of sanitation, food safety and the next bug that is killing their children." so that they can "... take ownership of their health, they can say ‘I feel well, I can make decisions in terms of my wellbeing and my family’s wellbeing.’"
Dr. Natalie Mayet is "Public Health Servant" and Co-Director of the South Africa Regional Global Disease Detection Centre at the National Institute of Communicable Diseases. Below, Natalie Mayet gives a heartfelt description of what keeps her motivated.

Natalie Mayet Video

Reducing the global burden of drug resistance is highly dependent on reliable cause of death data to clarify the extent of the epidemic and inform global and national priority setting, public health actions, and treatment decisions. Real-time high quality information on resistance trends, coupled with thoughtful practices on data sharing through dialogue and consensus, is essential to drive policy and to reduce mortality in children.

Concluding the session, David Harper,  Senior Consultant for the Center on Global Security, presented data sharing work, templates, and guidance from Chatham House over the past two years on data sharing. Part of these efforts involved, two round-table discussions with CHAMPS. He stressed, “Sharing data leads to improved public health action and saves lives...”. David Harper, Senior Consultant Chatham House

For the past two years, David Harper has been working on an intensive data and information sharing project involving round table discussions and work at the regional level (Asia and Africa). During this process they found a need to make a public statement about how important it is to share data effectively, many remarking that “if you don’t' share public health data you should be ashamed."
As a result, a board of more than 40 public health leaders composed a statement addressing data sharing that has over 50 signatories. They also provided a template for a model agreement with technical information such as intellectual property, benefit sharing, ethics and how to create a data management plan. It is not about taking information and acting as a custodian or repository, but providing guidance on how people can share data.

[We] create a framework where people want to share data. Sharing public health surveillance data saves lives.

David Harper
“”
 
David Harper
David Harper is the managing director of Harper Public Health Consulting Limited. He was previously special adviser at the World Health Organization in Geneva where his principal role was to advise on Global Preparedness for Health Security. Before March 2012, he was the chief scientist and director general for health improvement and protection in the UK Department of Health. He graduated from the University of Dundee and gained his PhD from the University of Birmingham. He is a fellow of the Society of Biology, a fellow of the faculty of Public Health of the Royal College of Physicians, and an honorary fellow of the Royal Society of Public Health. He was awarded the Commander of the Order of the British Empire in 2002. He has an honorary professorship at the University of Dundee, and an honorary doctorate of science from Cranfield University, where he is also a visiting professor.

CHAMPS DATA-TO-ACTION SESSION AT THE IANPHI ANNUAL MEETING

JEFF KOPLAN: Child Health and Mortality Prevention Surveillance Network Overview 

EDUARDO SAMO GUDO: CHAMPS and Data-to-Action: The role of the National Health Observatory 

NATALIE MAYET: CHAMPS in South Africa: What we hope to learn >> 

DAVID HARPER: Public Health Data Sharing: What have we learned >>

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Attending the Shanghai meeting were representatives from: Mexico, Brazil, Tanzania, France, USA, Afghanistan, Canada, Cuba, Denmark, Sweden, El Salvador, Guinea-Bissau, Morocco, India, Japan, Finland, Ethiopia, Burundi, Cameroon, Mongolia, Colombia, Belgium, Cote d’Ivoire, Georgia, Netherlands, Malawi, Kenya, Nepal, Germany, Nigeria, Cambodia, Guinea, Norway, South Africa, Spain, UK, Sudan, Palestine, Zambia, Uganda

IANPHI Members >>

IANPHI ANNUAL MEETING 2016 SHANGHAI >>

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